This year I have made so many good friends whom I initially met on Twitter or Facebook. There is a particular group of friends I’ve been close with this past 6 months, and they threw me a party in San Diego after I returned from my book tour in Japan.
Later that evening, I learned that one of my friends in the group, Hozue’s 17-year-old son, Hajime has ALS disease (also known as Lou Gehrig disease). He was diagnosed with this disease in fall this year, and he has already started having some difficulties with his speech. It is said that it’s one of the most difficult diseases one could have, because you will lose all of the muscle in your body over time while your consciousness is still intact. When my friend told us about it, I started to think about how I could help her and her son.
The answer came immediately; Enroll her son to the Remembrance course. It’s a weekend course which takes place at the Indigo Village in San Diego, and the next course is from January 21st through 23rd, 2011. I spoke with my mentor Susie Walton and Pamela Dunn, and they both agreed that the course will offer him a space to express his feelings as well as help him gain some tools to face his fears. I then talked to Hozue about this idea, and she spoke with her husband and her son – they agreed to move forward.
This is where I ask you for your support. I want to raise the course fee of $425 so her family can enroll Hajime for the Remembrance course. If you want to contribute, there are two ways to do so;
Write a check payable to “Indigo Village Educational Foundation”. Write “for Hajime Miyasaka’s course fee” on memo space and send it to
Etsuko Tsukagoshi, 3142 Midway Drive B212 San Diego CA 92110
2. On-line via Indigo Village Educational Foundation
For this option, the donation amount is set for $25, $50, $100 etc. but you can use your credit card to donate. Since there is no space to indicate that this is for Hajime Miyasaka, send me an email after you have donated this way (my email is firstname.lastname@example.org)
Indigo Village Educational Foundation is a non-profit organization, so your contribution will be tax deductible. I’ll be responsible for compiling the excel sheet to keep track of who has donated how much, so we can make sure that all of the donations will go towards Hajime’s course fee. Since the course will start on January 21st, if you could send the donation in by January 15, 2011, I would greatly appreciate it.
There is no cure for ALS disease. I won’t pretend that the Remembrance course will prevent his disease from progressing. Our life is ending one day at a time – that is true for everyone on this planet. But Hajime is only 17, and his life will be cut shorter than he or his family members have ever imagined. I trust my mentors, course instructors and my intuition that the Remembrance Course will give him the tools to deal with what remains of his short, yet meaningful life.